The team of doctors stopped by to check
on him and to see if we had any questions. His bloods ability to
clot was low, so he had to have fpir units of Fresh Frozen Plasma or
FFP--human plasma that has the clotting factors he needed. The last
time he had FFP it caused him to break out in hives and itch very
badly. The reaction was treated with Benadryl then, as well as
today.
FFP can make you feel sick, so he had
to take extra nausea medication as well.
Monday afternoon, Dr. Lee stopped by
the Dialysis department to exam Kerry and to discuss other available
treatments. Rituxan was mentioned. It is a chemo-therapy drug used
experimentally with MG patients. Since Rituxin is experimental in
treating MG and expensive, special approval is necessary. Now, the
question is, will the insurance company think it is "medically
necessary," and approve the drug?
The second choice is a high dose of
Cytoxin which kills the whole immune system, but is not quite as
drastic as a Bone Marrow Transplant, which also targets the immune
system.
Dr. Lee also wants him to check in with
his sleep doctor, to have the the settings rechecked on his Bi-Pap
machine.
Kerry stated that he was feeling the
worse yet, since he has been sick. This afternoon and early evening
he has been pretty well wiped out. He slept a lot and generally
isn't feeling well. He also had a low grade fever which is typical
with FFP. With MG, all of this is just par for the course.
--Cathy
Posts
No comments:
Post a Comment