- Dr. C.L., my neurologist, was concerned about my lack of improvement. I have not been doing well since the last plasma exchange in December 2013. He made some changes to my medications in hope of reducing some of the side effects I experience. My breathing is still very bad. In myasthenia gravis, one can have breathing issues but have normal oxygen levels. The problem is with the muscles that work the lungs.
He has
ordered a chest CT scan to check my thymus gland and for the presence
of lung disease. The thymus glad (connected with immune system
development) usually disappears in adults. An enlarged thymus has
been associated with autoimmune issues. So, if I have a thymus and it
seems enlarged, I will have surgery to remove it. If it is not
enlarged on the CT, they may consider surgery to remove my thymus
anyway. This is an open chest surgery. At this point, I am willing to
try anything to help my condition.
The
appointment with Dr. A.U., my endocrinologist, went well. She is
monitoring changes in my endocrine system caused by prednisone. So
far, she has things fairly well under control with medication. I am
blessed to have great doctors.
Posts
No comments:
Post a Comment