Condition Update (02/21/14)

Current Status: I have not improved much since the December 2013, plasma exchanges and chemo treatments. It may be due to my January bronchitis spell. I have felt very bad during the last two months.

I tried walking on our tread mill a few times to see if I could increase my stamina. I walked 1/2 of one tenth of a mile and spent the next day in bed. The tread mill did not work for me.

Breathing: Not good. Breathing is worse even at rest. Activity causes breathing issues, and is less manageable at present.

Mental Issues: No better.

Vision: Double vision is the same.

Muscle Jerking: Still present. No change.

Tingling: Still present. No change.

Tremors: Still present. No change.

Aching: Still present. No change.

Needle Pricks: Still present. No change.

Sensory Issues: Still present. No change.

Exhaustion: Still present. No change.

Weakness: Still present. No change.

Walking and Balance: Still present. No change.

Autonomic Nerves: Still present. No change.

Hypohidrosis: Still present. No change.

Body Temperature Regulation: Still present. No change.

Orthostatic Hypotension: Still present. No change.

Tenth Cranial Nerve Palsy: No change.

Voice: Doing OK, no real issues at present.

Headaches: Worse. Still a major issue.

Jaw/Temple Pain: Better at present. No change.

Whole Body Involvement: Still present. No change.

Swelling: Still present. No change.

Nausea: Some nausea after Cytoxan for a few days. Felt like I had the flu, but I did not. I still have occasional nausea.

Gastroparesis: Worse lately.

Hypogonadism/Gynecomastia: Still present. No change.

Bi-PAP: Still working well.

Summary: At present, my symptoms have stabilized due to a lot of high-power treatments. This is good and bad. I read a statement on the internet that sums up the fatigue issues one faces with myasthenia gravis. "You don't know what fatigue is until you have to rest after taking your shower." I am still alive and kicking, just low.