Body Betrayed | Body Disabled

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Wednesday, October 3, 2012

Cathy's Blog, October 3, 2012

Day Three
Wednesday, October 3, 2012

We are not in a "regular room yet." I am kind-of sorta irritated, but I understand that there are others that need more care than we do. So, all in all I guess I shouldn't be complaining.
This morning, Kerry had a temp of 100, however, these days it is not considered a temp. Later on though, it was normal. Kerry is doing well with his treatments. Of course, he is Benadryled up and has had steroids as well.

I think I mentioned that the doctors are closely monitoring his heart rate and blood pressure. They are setting up a time for him to meet with another neurologist whose specialty is the autonomic system. The autonomic system you have no control over; blood pressure, heart rate, etc.

It has been over a year since he had the IVIG infusion and during that time he started having Meningitis type headaches. This was a reaction to the IVIG, so a combination of Benadryl and Promethazine helped. Now, as many of you are aware, he keeps a headache most of the time. So, for funsies, (as I write) he is now having an MRI.

The MG is enough is enough of a problem in its own right, but the neuropathy seems to be playing Russian roulette with his body.

This has been the hardest thing we have ever had to face, and I don't understand why and will not this side of Heaven. Maybe not even there. Most of the time, I guess we do okay dealing with it, but some days, I myself, would like to scream and throw things. This is not where we want to be, but apparently God is okay with where He has us.

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