- It has been awhile since my last report. I have spent most of my writing time of my next book, Body Disabled: My Journey through Disability and Trust.
- My appointment with the sleep doctor went well and the BIPAP is working as expected. I have two appointments this month at Vanderbilt, both in connection with obtaining a wheelchair or scooter. The first appointment is with the neurologist, I will bring up more plasma exchange with him then. The second appointment is with physical therapy for an evaluation. We shall see.
- In September and October I had chemotherapy treatments. I can tell the treatments are still working, but are losing effectiveness over times. I am have lots of trouble with my breathing soon and that makes me think it will not be long before I need more plasma exchange. Dr. CL asked me to note how I did between chemotherapy infusions. I kept a log for two months. Here are the results.
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- Dr. CL: Here is a summary of how I have been doing since August 06. I added some numerical values to certain issues and did a graph. I can tell when the chemo wears off.
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- Breathing
- August 06, 2013 1 Difficult with activity and resting (Chemo day)
- August 08, 2013 1 As before chemo
- August 12, 2013 3 Slight improvement
- August 17, 2013 5 Some improvement
- August 22, 2013 4 Becoming more labored with activity
- August 27, 2013 4 Same
- August 28, 2013 3 Difficult with activity and rest now
- August 31, 2013 2 Slightly more difficult
- September 2, 2013 1 Slightly more difficult
- September 4, 2013 1 Breathing difficult (Chemo day)
- September 6, 2013 1 No change
- September 8, 2013 3 Very slight improvement
- September 11, 2013 3 No change
- September 15, 2013 3 No change
- September 18, 2013 4 Slight improvement
- September 21, 2013 4 No change
- September 25, 2013 3 Some worse
- September 27, 2013 3 More difficult
- September 29, 2013 2 More difficult
- October 01, 2013 1 More difficult
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- Heel Walking
- August 06, 2013 0 Cannot walk on heels (Chemo day)
- August 08, 2013 3 Improving
- August 12, 2013 7 Better
- August 17, 2013 9 No problems
- August 22, 2013 9 No problems
- August 27, 2013 6 More difficult
- August 28, 2013 5 More difficult, fewer steps
- August 31, 2013 4 More difficult
- September 2, 2013 3 Few Steps
- September 4, 2013 2 Two steps (Chemo day)
- September 6, 2013 5 Improving
- September 8, 2013 8 Better
- September 11, 2013 9 No problems
- September 15, 2013 10 No problems
- September 18, 2013 9 No problems
- September 21, 2013 9 No problems
- September 25, 2013 6 More difficult
- September 27, 2013 4 More difficult
- September 29, 2013 2 More difficult, fewer steps
- October 01, 2013 0 Cannot walk on heels
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- Penny Curling
- August 06, 2013 0 Zero times (Chemo day)
- August 08, 2013 5 Five times
- August 12, 2013 9 Ten times
- August 17, 2013 10 Ten+ times
- August 22, 2013 10 Ten+ times
- August 27, 2013 7 Seven times
- August 28, 2013 6 Six times
- August 31, 2013 5 Difficult six times, Zero with left arm
- September 2, 2013 3 Three times, Zero with left arm
- September 4, 2013 2 Two times, Zero with left arm (Chemo day)
- September 6, 2013 4 Four times
- September 8, 2013 5 Five times
- September 11, 2013 9 Ten times
- September 15, 2013 10 Ten+ times
- September 18, 2013 10 Ten+ times
- September 21, 2013 9 Ten times
- September 25, 2013 5 Five times
- September 27, 2013 3 Three times
- September 29, 2013 2 Two times
- October 01, 2013 0 Cannot lift pennies
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