Body Betrayed | Body Disabled

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Tuesday, March 23, 2010

Hang in There!

I am beginning to receive comments and emails from various people. Over 1,000 have accessed this blog so far. Thanks.

Some of you are experiencing similar symptoms. I know what you are going through. I know from first-hand experience that it is very difficult to find good information about Small Fiber Neuropathy. I know how difficult and frustrating it is to find doctors who understand and listen as you try to explain your symptoms. I am fortunate to be in clinic at Vanderbilt with good, understanding doctors.

I know how hard it is to explain just how you really feel. I know it is almost impossible to put words to those feelings. I know how tired, fatigued, and exhausted this neuropathy makes you. I know what it is to vibrate all over. I know what it is like to be compared to some who only hurts in their feet, not their entire body. I know what it is like when people think, "it can't be that bad."

I know what it is to think that you are the only person in the world who feels this way. I know what it feels like to face the possibility of disability in the prime of life because you body is betraying you. I know what it is like to see a light at the end of a tunnel, only to find out its a freight train. Been there, done that, got the tee-shirt!

I want you to know that you are not alone. I empathize with you. I know and understand--at least a little bit of--what others are going through. Hang in there. Don't give up! There is hope!

What has kept me going so far? Faith in God. I have not talked about my faith too much so far. But, it is essential to my coping with everything that is happening. I truly believe that above everything else, God is good!

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